May Community Spotlight

The Federal News Radio Community Spotlight is

Founded in 1974 by four mothers, the Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected by:

  • Developing programs, support services and resource information;
  • Stimulating and sponsoring research; and
  • Creating and implementing public and professional educational programs designed to heighten awareness of the disease.

Tuberous sclerosis complex–or TSC–is a genetic disorder that causes tumors to form in vital organs, primarily the brain, eyes, heart, kidney, liver, skin and lungs. TSC is a highly variable disease. Some people with TSC live independent, healthy lives and enjoy challenging professions such as doctors, lawyers, educators and researchers. Others with the disease often experience uncontrollable seizures, autism, heart disease, learning and behavioral problems, facial disfigurement, kidney failure and, sometimes, even death.

In addition, TSC is the leading genetic cause of both autism spectrum disorder and epilepsy. Up to 50 percent of people with TSC develop autism, while about 85 percent experience seizures at some point during their lives.

For more information, visit today.

Step Forward to Cure TSC National Walk 

Become a superhero and join the fight against tuberous sclerosis complex on Sunday, May 6 at Constitution Gardens on the National Mall.